May will be upon us in one week. With May comes the nine year anniversary of my various illnesses and trials. Last year I wrote a rather difficult post, Sick cycle carousel, documenting the progression of my various conditions, depression, and to a small extent my coming out journey. Below is the next part in the Sick cycle series. You might want to read parts one and two.
It seems that the ending of part two was a little bit too optimistic. Don’t get me wrong, I am happy (and I certainly was at the time I wrote that) but I can’t really say I’m all that content anymore. My back has been a lot of trouble lately, I’m downing drugs at an alarming rate, and I’m still kinda upset about Sister’s attitude in The Talk.
January 2007
After the loss of Pop, life was less sunny. I shepherded in the new year with Liz in a quiet ceremony with sparklers, champagne and Roger Rabbit. I spent most of January with The Beach Crew at Cal’s parents’ holiday house up north and on the Central Coast. My health waxed and waned, I was still popping pain killers left, right and centre, but for the most part I was excited at the prospect of starting at Sydney Uni in March.
February-April 2007
I turned 23 on the first and on the nineteenth we celebrated Pop’s birthday for the first time without him. Then I started uni and met a lot of really intelligent people who intimidated me very quickly. I had classes on three days a week, and as a general rule I was able to make the journey to Sydney at least twice a week. I did well in both subjects, gaining high distinctions in both. I enjoyed my time but the extra stress, walking, and sitting up took a toll on my already fragile health. Many nights I felt trapped, a youthful spirit caged up in an aching, ailing prison of a body.
I met Kate in March and we quickly formed a close bond. Within no time I began to refer to her as my sister, and her son, Lance, refered to me as Uncle Dan. Along with Liz, whom I consider my sister also, Kate is one of my best friends.
The day after St Patrick’s day I came out to Mum and Dad, which was, as you can imagine, a huge burden off my mind. After some initial teething problems, Mum came around; Dad didn’t give a shit from the start…finally I felt more myself in my own home.
May-August 2007
As the realisation that coming out to Sister was inevitable dawned on me, I suddenly suffered a bout of migraines at a rate of nearly two per week. Dr KHS, whom I started to believe was loosing his touch, advised cutting pain meds to see if they were the cause. Within a week or so I knew this wasn’t the case and went back to the normal dosage, however the migraines persisted.
As well as being migraine-prone, I found myself becoming depressed. The reason wasn’t clear at the time but with the benefit of hindsight I can see that it was all related to the intense sense of foreboding welling up inside me about Sister’s reaction. I sought shelter from the migraines and the depression in sleep. I was also struck at about this time that I forget how it feels to be totally healthy. Having been sick for eight years at this point, my last healthy memory was at the age of 14.
I came out to Sister on the 27th of May. We never spoke of it in any meaningful way for ten months. The migraines stopped soon after. The depression, on the other hand, continued. I felt trapped by illness and circumstance, hopeless, locked in a constant battle between my heart and my head.
September-October 2007
As the pain in my legs got worse and worse, Dr KHS switched the anti-convulsant (which I take as it blocks neural pain signals in the brain). I had every side-effect that the package warned against. I was nauseous, my knees were constantly inflamed, I was dizzy, spaced-out and all-in-all did a fabulous Anna Nicole Smith impression. I felt like a lab rat. The pain did go away after some time but the side-effects were way too much to bear. I couldn’t function at all and ultimately after a fortnight I switched back. The pain came back, followed by the vicious cycle of pain-drugs-nausea-sleep-pain. The high dose of pain killers left me in a perpetual haze. To add insult to injury I picked up gastro at some point.
I outed myself to the Family-at-Large by a rather cunning plan involving step cousins, the FAL’s natural propensity to gossip, and Facebook. Finally everyone knew and I didn’t have to lift more than a finger.
We sold Pop’s house. That was difficult.
November 2007-February 2008
I went to a neurologist; it was a waste of a morning. He was an odd little man and he told me nothing I didn’t already know. I did, however, get some stronger pain killers which made like a lot easier to deal with. I also changed anti-depressants from an SSRI (which I had been taking since the age of 17) to a tricyclic, which blocks pain signals as well as stabilising mood. I changed pain killers again and finally had a winner. CTs and X-rays revealed nothing. I started smoking weed to help with the stabbing pain in my back and shoulders. It helped too, it was a lot of fun in fact, but all in all no cause was found, nothing really helped in any permanent way… and so it continued. I struggled to get my head above water for a time but after I found my footing with the tricyclic antidepressant, my mood did eventually even out.
February 2008 onwards
I moved to Glebe into a house full of strangers. The Space Cadet makes life interesting. The Optimist and I are becoming good friends. The Guyanan and The Accountant I don’t have much to do with. Though my depression seemed to be under control, I was suddenly gripped with anxiety at having to fend for myself.
The pain in my back and shoulders continued to get worse; I continued popping pills (and have made a few faux-pas while under the influence…). As I write this, I am doped up and as soon as the effects wear off I will be writing again. Last night I got no sleep. I’m going to a chiropractor or physio on Monday. Someone has to be able to do something.
Life has to be better from this.