Wednesday, November 07, 2007

A charming phone call

The just rang. I looked at the little caller ID window and saw “Aunt Agony” and called out to Dad to answer the phone because I really wasn’t in the mood to talk to her. He answered and shortly after came into my room, proffering the phone in my direction. I sighed and said hello.

“Hello darling, how are you?”
“Terrible.” This was mistake number one.
“What’s wrong?”
“My legs are fucked.” Second mistake, which I tried to rectify by saying “I have a CT scan on Friday so hopefully that brings some answers.” I was hoping dropping the CT in would show her there was some level of mystery and seriousness. I don’t think it worked too well…

“It’s because you don’t move them enough.”
“Nooo… I move plenty and it makes no difference.” And it’s true. I do exercises and it makes no difference. If anything, I think I deserve an award for actually trying to exercise in pain rather than lying back and whining about it!
“Well it could be growing pains.”
“Ummm… I’m 23.” Besides, many doctors believe the elusive umbrella-termed growing pains to be early manifestations of fibromyalgia (as in my case) or other musculoskeletal conditions like arthritis etc.
“So? You have one last shot going on at the moment.”
“I don’t think so. This isn’t growing pains. Anyway we’ll see what happens on Friday and what the doctors say, hopefully can shed some light on all this.” I was going to mention the neurologist appointment too, because I figure that that, in combination with a CT, might appeal to her sense of basic empathy, but I decided against it because I just couldn't be arsed arguing with her any further.

I interrupted with “Anyway, what can I do for you?” in attempt to divert the conversation to a place were I wouldn’t be likely to tell her what I thought of her or her unwarranted and ultimately useless diagnoses and recommendations.

As the conversation wound up, she drove in the last nail with “Think positive thoughts, darling.”
“I do think positive thoughts, Agony, it doesn’t make much difference. The pain doesn’t change with my mood.”
She chose not to respond, which was good because it would have lead into a whole other area that I really don’t want to discuss with her.

At the end, she told me she loves me, and we said our goodbyes. What I want to know is where the fuck do concerned relatives get their medical degrees/training/experience? Are these institutions of higher learning open to all, or only aunts and other assorted familial hangers-on?

2 comments ... click here to comment:

Calla said...

Oh oh oh! I know the answer to this one!

A Current Affair.

Every time there is another sodding "cure" offered up in the 7:30 time slot, the small army of well-meaning acquaintances (if they weren't to start with, they are now!) get on the blower and ask if I know it is on, and if I'd like them to tape it. I of course thank them and carry on with my life sans snake oil.

This inevitably leads to the puzzled looks and thinly veiled anger next time they see me turn a lovely shade of lobster or lose my legs because obviously since I didn't get off my lazy backside and go to Dr Opportunity to get my sorry self cured so I could get on with life, I must want to stay sick. It is utterly incomprehensible that I wouldn't be bending over backwards trying every unproven cure and treatment on the off-chance it could get me a nice 9-5 life that the world could relate to. I must say though, in that respect, they don't really differ much from well-meaning but misguided medical professionals who come up with completely implausible cures.

So yes, you watch ACA and you keep checking that Weet bix box for the medical degree. I'd take a guess that they are in about ever 2nd box.

Brian said...

http://hummingbunny.wordpress.com

Thanks for the invite from Kate's blog. I think my CFS started around 1997 as well. I know I have little memory left of that time. I'm fortunate in that I did a slow recovery over years and regained about 70% of my previous levels. Except memory and most of my cognitive functions.

I do work full-time and just published my first novel. Of course, being a multiple personality is a lot like being gay. Rose, my strongest multiple is just drooling over the pictures on your blog. 'Mouthwatering' is her phrase. Her blog is at http://dewyknickers.wordpress.com

Trust me when I tell you, she's as real as you and I and isn't shy about stating it.

Hope things get better for you, at least with the discovery of the virus in the stomach lining, CFS is finally acknowledged as being 'real. Sure feels real to me.

Brian and Rose